Henry's Village Event at Snow Farm Vineyard | Open Farm Week 2024

The "For Henry AHC" non-profit is hosting a dinner at Snow Farm Vineyard to celebrate Henry’s Village, a fundraising effort to help Henry, a 4 year-old Vermonter with a rare neurodegenerative disorder called AHC. This dinner will be provided by favorite Vermont food and beverage sponsors, a complimentary beer or wine, an auction, concert from Kat Wright and her band, flowers from June Farm, and professional photography by Colette Kulig.

Food and beverage sponsors includes Snow Farm Vineyard, Zero Gravity, Whistle Pig Whiskey, Jasper Hill Farm, Ben and Jerry’s, Cold Hollow Cider Mill, Prohibition Pig, American Flatbread, Pizzeria Veritas, Our House Bistro, August First, Nu Chocolat, Ecobean, and Roll Away Cafe. The event will include many lives. The auction includes items from Indigo Salon, Peche Medical Spa, Lunaroma, Phish, NHL, Commando, Vermont Teddy Bear, Darn Tough, Whistle Pig, Stephanie Grace Ceramics, a custom walnut live edge table from The Treehouse Hardwoods & Millshop, gift cards for Farmhouse Group, Cabot, American Flatbread, and personal training sessions with Breakwave Coaching. Giftbags include items from Ursa Major, Indigo Salon, and Runamok maple syrup.

All current and prospective members of Henry’s Village are encouraged to support Henry through attending the event or purchasing an "I can't make it, but wish I could!" ticket, raising awareness on social media and newsletters, offering employee charitable matches, donating auction or gift bag items, making a corporate charitable donation, and sharing our story with the media. The impact of Henry’s village reaches far beyond Henry, in supporting his historic treatment which will change many lives. 

Cost is $125 per individual and $1,000 for a table of 8. Please register for this event. 

The fundraiser is being hosted during Open Farm week to encourage folks to visit the farm and support the cause.

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Snow Farm Vineyard has been growing grapes in the Champlain Islands since 1997. Using these grapes they make wine and distilled products from the land. Incorporating their maple sugaring operation, island raspberries, juniper berries and more into their products.

Henry, a local 4 year old Vermonter has AHC- a rare, neurodegenerative disorder which causes life threatening symptoms of seizures, difficulty breathing, and paralysis near daily. His parents created a non-profit For Henry AHC to fund and develop an ASO treatment for Henry with Boston Children's hospital. They are halfway there in raising the full $3M needed before Henry can be treated in a year. In an effort to raise funds and awareness for Henry, a group of iconic Vermont companies has rallied around him to create Henry’s Village. Vermont Teddy Bear generously created a four foot Henry Bear who has been dressed and accessorized by iconic Vermont brands including: Orvis, The Vermont Flannel Co., Johnson Woolen Mill, Skida, Darn Tough, Commando, DandyLion, Simon Pearce, Danforth, Field Company, Vermont Butcher Block, Stephanie Grace Ceramics, Queen City Dry Goods, and 4T2D. This Henry Bear serves as the mascot for Henry’s Village and has inspired other local businesses to support Henry through roundups at City Market Coop and Jersey Mike’s, flower and reusable bag donations at Hannaford, and through featuring a Henry themed Smoothie at Ecobean.